Difficult Conversations – Heart Failure

Difficult Conversations – Making it easier to talk to people with heart failure at the end of life Click HERE

This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.

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Palliative Care & Disabilities

This All Ireland seminar, jointly funded by the HRB and HSC R&D and hosted by the AIIHPC in June 2018, focussed on the challenges for people with life limiting disabilities, the impact and implementation of the new legislation in relation to decision making and what this means for health care researchers and professionals to support evidence-based practice.

The seminar had a number of speakers and the videos of the presentations can be viewed by clicking HERE


Agenda

Supporting people with intellectual disability and advanced dementia: Complexities in end of life care Professor Mary McCarron, Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin (TCD)

Key considerations in relation to the Mental Capacity Act (NI) 2016 from the clinical perspective Dr Gerry Lynch, Chair of Royal College of Psychiatrists Northern Ireland

Legal capacity legislation on the island of Ireland and its human rights implications Dr Eilionóir Flynn, Director of the Centre for Disability Law and Policy and Senior Lecturer, School of Law, National University of Ireland Galway (NUIG)

Conversation Panel 1: What are the main considerations for people with life-limiting disabilities receiving palliative care and this legislation? Chair: Associate Professor Suzanne Guerin Participants: Eithne Frost (AIIHPC Voices4Care); Kathy Ryan (Alzheimer Society of Ireland’s Irish Dementia Working Group); Prof Mary McCarron; Dr Gerry Lynch; Dr Eilionoir Flynn; Deirdre Shanagher (Development Officer, Irish Hospice Foundation)

Implementation of the Assisted Decision-Making (Capacity) Act 2015: Implications for health and social care professionals Áine Flynn, Director of the Decision Support Service (DSS), Mental Health Commission

Health services perspective on implementing this legislation Caoimhe Gleeson, National Programme Lead – Assisted Decision Making, Health Services Executive (HSE)

How will legislation impact practice? Professor Gavin Davidson, Senior Lecturer School of Social Sciences, Education and Social Work, Queens University Belfast (QUB)

Research collaboration supporting practice: University of Limerick and Milford Care Centre Dr John Lombard, Lecturer in the School of Law, University of Limerick (UL) and Dr Martina O’Reilly, Head of Education, Research and Quality, Milford Care Centre

Conversation Panel 2: How can research support implementation of the legislation? Chair: Associate Professor Suzanne Guerin Participants: Áine Flynn; Prof Gavin Davidson; Dr John Lombard; Dr Martina O’Reilly; Caoimhe Gleeson; Dr Bernadette Rock (Policy and Research Manager, The Alzheimer Society of Ireland)

Palliative Care Research Zone on AIIHPC

In May, the AIIHPC launched a newly developed research zone on The Palliative Hub – Professional. The research zone is now broken down into several easy to navigate sections including: Palliative Care Research Projects and News & Events. The research zone will continue to evolve over time.

To access the Palliative Care Research Network, Early Career Researcher Forum, Research Projects, Guidance for conducting research projects, Knowledge Dissemination Click here

HSE Policy on GDPR

General Data Protection Regulations is an EU law on data protection and privacy that came into force in May 2018. More information about the HSE Data protection policy, GDPR and training resources from the Health Service Executive are available HERE

Every nurse an e-nurse: insights for a consultation on the digital future of nursing

This report outlines the results of a consultation with nurses and midwives on what is needed for nursing to play its full part in the digital transformation of health care. It argues that until the NHS takes full advantage of the expertise and views of nurses, it won’t be able to realise all the benefits that digital technology can bring for patients and staff. Full-text HERE

Enhancing adult bereavement care across Ireland

Enhancing adult bereavement care across Ireland is a study written by Kathy McLoughlin and published by the Irish Hospice Foundation in May 2018. It examines why Ireland needs a bereavement care structure, looks at international evidence and outlines how a national structure might work. Full-text available HERE

Health Service’s Change Guide

The HSE have launched the website supporting their Health Services Change Guide. There are a number of documents on facilitating change and the way in which the HSE expects staff, managers and leaders to behave in relation to change. There are also templates, some of which may be useful to those of you leading teams or developing strategies.

The Health Services Change Guide is a step by step guide that will help you to lead and bring about change. This Change Guide works as part of the HSE  Human Resource and other service, quality improvement and culture change programmes. In line with Health Services People Strategy 2015 -2018 all of these programmes aim to move closer to the goal of delivering person centred care and public value. Click HERE