Palliative Care, End of Life and Bereavement Education Database

The Palliative, End of Life and Bereavement Education Database is a searchable database of courses offered by hospices, universities, colleges, charities, professional organisations at a varying level through to Masters of Science and Doctoral level. It allows you to search for a variety of courses, workshops, conferences as well as full and part-time courses. The aim is to improve access to palliative care education across the Island of Ireland.  To access this online education directory, click HERE

Advertisements

Voices4Care

Through Voices4Care, All Ireland Institute of Hospice and Palliative Care (AIIHPC) is committed to having the views of people with palliative care needs and their families at the heart of what we do. We work with a range of hospices, health and social care organisations and universities across the island of Ireland. Palliative care focusses on helping a person with a life-limiting illness to achieve the best quality of life as their illness progresses.

Joining Voices4Care will give you the chance to influence palliative care education, research, policy and practice.

If you are a person with palliative care needs, a carer, or a citizen interested in improving palliative care, we want to hear from you.

Members will have meaningful opportunities to influence and shape palliative care in Northern Ireland and the Republic of Ireland.

To find out more, visit https://aiihpc.org/our_work/policy-practice/voices-4-care/ For further information, contact the AIIHPC Tel – 01 4912948 or email bohara@aiihpc.org 

 

Dementia: assessment, management and support for people living with dementia and their carers

This NICE guideline published in June 2018 covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia. Full-text available – Click HERE

Recommendations

This guideline includes recommendations on:

Who is it for?

  • Healthcare and social care professionals caring for and supporting people living with dementia
  • Commissioners and providers of dementia health and social care services
  • Housing associations, private and voluntary organisations contracted by the NHS or social services to provide care for people living with dementia
  • People living with dementia, their families and carers

Online course – Parkinson’s: managing palliative and end of life care

Parkinson’s: managing palliative and end of life care – free online training resource from Parkinson’s UK and the Open University. Duration: 10 hours

Who is the course for?

It has been designed for professionals, such as Parkinson’s specialist nurses and other clinicians, who work as part of the specialist team during the palliative and end of life phases. It may also be useful for health and social care professionals who already have experience of working with people with Parkinson’s, but wish to enhance their knowledge of palliative and end of life care in Parkinson’s.

What participants will learn

  • the principles of palliative and end of life care and how these can be applied in Parkinson’s
  • how to identify the challenges in practice of applying palliative and end of life care principles in Parkinson’s
  • the theory of advance care planning and the issues involved, such as power of attorney or advance decision to refuse treatment
  • the symptoms which indicate the end of life phase in Parkinson’s and the issues in management of this phase
  • the importance of the family/carers of the client and their needs throughout the end of life phase through to bereavement

How does it work?

  • As a health or social care professional you will have already undertaken learning on Parkinson’s or have a good understanding of the condition. If you don’t we suggest you first take one of the courses in the related training section below.
  • This course is not suitable for professionals with a limited understanding of Parkinson’s.
  • The course is on the Open University’s OpenLearn Create website. You can work through it online at a pace that suits you.
  • You will have an opportunity to reflect on your practice, and you can use it as a framework to support group work with your colleagues.

HEAR Bulletin – Focus on Cystic Fibrosis

HEAR

This issue of Health Evidence Awareness Report focuses on Cystic fibrosis. It contains information for healthcare professionals such as links to Irish research, systematic reviews, guidelines. It also has patient-specific information such as links to useful websites, books and videos. Full-text is available CLICK HERE

Talking about Dying: How to begin honest conversations about what lies ahead

Talking about dying

Produced by the Royal College of Physicians, this report seeks to offer advice and support for any doctor to meet these challenges when caring for patients with a diagnosis of a serious, potentially life-limiting illness. It highlights some of the barriers, and busts common myths that might hamper a successful conversation between doctor and patient.  have also collated a series of resources and best practice to aid doctors to develop and improve in confidence when discussing their patients’ preferences and values, as they approach the end of life. Full-text available HERE

 

The Spread Challenge

The spread challenge: How to support the successful uptake of innovations and improvements in health care. Tim Horton, John Illingworth and Will Warburton

Full-text available HERE

What this report is about and why it matters – How to spread new ideas and effective practices from one organisation to another to improve care and reduce unwarranted variations in performance is one of the central challenges facing the NHS.

This report focuses on a different problem, one that has received far less attention, but which we believe is equally pressing: that when an individual, team or organisation does take up a new innovation it may not work as well as it did first time round – something we see particularly with complex health care interventions that seek to make improvements in clinical processes or pathways. We therefore set out to investigate not the factors affecting the uptake of innovations in health care, but the factors affecting their successful uptake. We do this in several ways, reviewing the literature on this problem, drawing out lessons from Health Foundation projects and evaluations, and also interviewing key actors – innovators and adopters, who provide vital insights from the front line of health care, as well as expert stakeholders involved in supporting scaling and spread.