Difficult Conversations – Heart Failure

Difficult Conversations – Making it easier to talk to people with heart failure at the end of life Click HERE

This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.

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Palliative Care & Disabilities

This All Ireland seminar, jointly funded by the HRB and HSC R&D and hosted by the AIIHPC in June 2018, focussed on the challenges for people with life limiting disabilities, the impact and implementation of the new legislation in relation to decision making and what this means for health care researchers and professionals to support evidence-based practice.

The seminar had a number of speakers and the videos of the presentations can be viewed by clicking HERE


Agenda

Supporting people with intellectual disability and advanced dementia: Complexities in end of life care Professor Mary McCarron, Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin (TCD)

Key considerations in relation to the Mental Capacity Act (NI) 2016 from the clinical perspective Dr Gerry Lynch, Chair of Royal College of Psychiatrists Northern Ireland

Legal capacity legislation on the island of Ireland and its human rights implications Dr Eilionóir Flynn, Director of the Centre for Disability Law and Policy and Senior Lecturer, School of Law, National University of Ireland Galway (NUIG)

Conversation Panel 1: What are the main considerations for people with life-limiting disabilities receiving palliative care and this legislation? Chair: Associate Professor Suzanne Guerin Participants: Eithne Frost (AIIHPC Voices4Care); Kathy Ryan (Alzheimer Society of Ireland’s Irish Dementia Working Group); Prof Mary McCarron; Dr Gerry Lynch; Dr Eilionoir Flynn; Deirdre Shanagher (Development Officer, Irish Hospice Foundation)

Implementation of the Assisted Decision-Making (Capacity) Act 2015: Implications for health and social care professionals Áine Flynn, Director of the Decision Support Service (DSS), Mental Health Commission

Health services perspective on implementing this legislation Caoimhe Gleeson, National Programme Lead – Assisted Decision Making, Health Services Executive (HSE)

How will legislation impact practice? Professor Gavin Davidson, Senior Lecturer School of Social Sciences, Education and Social Work, Queens University Belfast (QUB)

Research collaboration supporting practice: University of Limerick and Milford Care Centre Dr John Lombard, Lecturer in the School of Law, University of Limerick (UL) and Dr Martina O’Reilly, Head of Education, Research and Quality, Milford Care Centre

Conversation Panel 2: How can research support implementation of the legislation? Chair: Associate Professor Suzanne Guerin Participants: Áine Flynn; Prof Gavin Davidson; Dr John Lombard; Dr Martina O’Reilly; Caoimhe Gleeson; Dr Bernadette Rock (Policy and Research Manager, The Alzheimer Society of Ireland)

Palliative Care Research Zone on AIIHPC

In May, the AIIHPC launched a newly developed research zone on The Palliative Hub – Professional. The research zone is now broken down into several easy to navigate sections including: Palliative Care Research Projects and News & Events. The research zone will continue to evolve over time.

To access the Palliative Care Research Network, Early Career Researcher Forum, Research Projects, Guidance for conducting research projects, Knowledge Dissemination Click here