AIIHPC Palliative Hub

AIIHPC recently launched The Palliative Hub (http://www.thepalliativehub.com/about-us), an online gateway to information and resources about palliative care which includes:

  • Palliative Hub – Children and Young People – website for parents and families of children and young people with life limiting conditions
  • Palliative Hub – Adult – website for people with life limiting conditions, their carers and family members
  • Palliative Hub – Learning Platform – an online learning environment including a number of free to access online learning programmes for professionals and the public
  • Palliative Hub – Professional – website providing resources for health and social care professionals, researchers and educators.

 

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Think Ahead: every life is a journey

The Irish Hospice Foundation encourages you to  Think Ahead

The purpose of Think Ahead is to help members of the public talk about and record their preferences in the event of emergency, serious illness or death.

The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.

Irish Hospice Foundations – Beginning at the End Videos

Videos produced by the Irish Hospice Foundation – “Beginning at the End”

Difficult Questions

How Can I Help

Introduction to Spirituality

Religion and Spirituality

Finding Meaning

Being Brave

Differing Views

Empathic Listening

National Summary of Patient Activity Data for Adult Specialist Palliative Care Services in The Republic of Ireland, 2012-2015

This report presents collated data from the Specialist Palliative Care Minimum Data Set (MDS) from the years 2012-2015 and reflects a picture of the activity within the specialist palliative care services in community, day-care and inpatient units.  Every service contributes to the Minimum Data Set and there is almost 100% compliance with regard to metric data submission.

The work on the report was carried out in partnership with the HSE and a project steering group with support from the Irish Hospice Foundation. Full text is available  HERE OR on the Irish Hospice Foundation website http://hospicefoundation.ie/?page_id=28820&preview=true

Care of the deceased patient and their family. A guideline for nursing practice in Northern Ireland

This guideline has been written by the HSC Bereavement Network for registered nurses, healthcare assistants and other healthcare professionals who may have responsibility for providing care during and after the death of a patient in acute, secondary or primary care settings.

The guideline aims to:

• Promote safe and sensitive care of the body at the time of and after death, taking into consideration the wishes of the deceased patient and their family

• Ensure the deceased person is treated with dignity and respect, and that cultural and spiritual needs are met

• Promote effective inter-agency working by outlining the roles and responsibilities of relevant professionals and organisations who are involved in caring for the deceased patient and their relatives

• Promote effective communication and provide information to assist families when dealing with the practical issues that arise as a result of the death eg. registration of death or a death that is referred to the Coroner

• Inform the development of relevant policy, procedures and protocols to guide the practice of health and social care staff

• Provide a resource that will be useful for pre and post registration training and education and contribute to the professional development of nurses in the care of the deceased patient and their family.

Full-text Click HERE