Difficult Conversations – Heart Failure

Difficult Conversations – Making it easier to talk to people with heart failure at the end of life Click HERE

This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.

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Palliative Care & Disabilities

This All Ireland seminar, jointly funded by the HRB and HSC R&D and hosted by the AIIHPC in June 2018, focussed on the challenges for people with life limiting disabilities, the impact and implementation of the new legislation in relation to decision making and what this means for health care researchers and professionals to support evidence-based practice.

The seminar had a number of speakers and the videos of the presentations can be viewed by clicking HERE


Agenda

Supporting people with intellectual disability and advanced dementia: Complexities in end of life care Professor Mary McCarron, Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin (TCD)

Key considerations in relation to the Mental Capacity Act (NI) 2016 from the clinical perspective Dr Gerry Lynch, Chair of Royal College of Psychiatrists Northern Ireland

Legal capacity legislation on the island of Ireland and its human rights implications Dr Eilionóir Flynn, Director of the Centre for Disability Law and Policy and Senior Lecturer, School of Law, National University of Ireland Galway (NUIG)

Conversation Panel 1: What are the main considerations for people with life-limiting disabilities receiving palliative care and this legislation? Chair: Associate Professor Suzanne Guerin Participants: Eithne Frost (AIIHPC Voices4Care); Kathy Ryan (Alzheimer Society of Ireland’s Irish Dementia Working Group); Prof Mary McCarron; Dr Gerry Lynch; Dr Eilionoir Flynn; Deirdre Shanagher (Development Officer, Irish Hospice Foundation)

Implementation of the Assisted Decision-Making (Capacity) Act 2015: Implications for health and social care professionals Áine Flynn, Director of the Decision Support Service (DSS), Mental Health Commission

Health services perspective on implementing this legislation Caoimhe Gleeson, National Programme Lead – Assisted Decision Making, Health Services Executive (HSE)

How will legislation impact practice? Professor Gavin Davidson, Senior Lecturer School of Social Sciences, Education and Social Work, Queens University Belfast (QUB)

Research collaboration supporting practice: University of Limerick and Milford Care Centre Dr John Lombard, Lecturer in the School of Law, University of Limerick (UL) and Dr Martina O’Reilly, Head of Education, Research and Quality, Milford Care Centre

Conversation Panel 2: How can research support implementation of the legislation? Chair: Associate Professor Suzanne Guerin Participants: Áine Flynn; Prof Gavin Davidson; Dr John Lombard; Dr Martina O’Reilly; Caoimhe Gleeson; Dr Bernadette Rock (Policy and Research Manager, The Alzheimer Society of Ireland)

Enhancing adult bereavement care across Ireland

Enhancing adult bereavement care across Ireland is a study written by Kathy McLoughlin and published by the Irish Hospice Foundation in May 2018. It examines why Ireland needs a bereavement care structure, looks at international evidence and outlines how a national structure might work. Full-text available HERE

HEAR Health Evidence Awareness Reports

HEAR (Health Evidence Awareness Report) are published by a collaborative group of healthcare librarians working mainly in the HSE and other healthcare organisations in Ireland.

For healthcare professionals, there are links to relevant guidelines, research and reviews. For patients and the public, there is information on quick reads, useful websites and support services. We have created a suite of bulletins based on a comprehensive list of health care topics which you will see listed below.

Focus on Ovarian Cancer                               

Focus on Bowel Cancer                           

Focus on Mental Health.                                

Focus on Heart Health                                   

Focus on Breast Cancer.

Focus on Prostate Cancer.                              

Focus on getting active and eating healthily.

Focus on Palliative / End of Life Care. 

Focus on Skin Cancer.                                    

Focus on Medical Resources.

Focus on Diabetes.                                          

Focus on Dyslexia

Focus on Obesity.                                           

Focus on Stroke.                                             

Focus on Health Literacy.                              

Focus on Delirium.                                         

Focus on Lung Cancer.  

Focus on Autism Spectrum Disorder.            

Focus on Homelessness.                              

Focus on Bereavement.                                 

Ted Talks Palliative Hub

Ted Talks are available on the All Ireland Institute of Hospice & Palliative Care Hub specifically relating to palliative and end of life care.

TED is a nonprofit devoted to spreading ideas, usually in the form of short, powerful talks (18 minutes or less). TED began in 1984 as a conference where Technology, Entertainment and Design converged, and today covers almost all topics — from science to business to global issues.

A video game to cope with grief

Let’s talk about dying  

Stories from a home for terminally ill children

Listen to these powerful stories HERE

 

AIIHPC Palliative Hub

AIIHPC recently launched The Palliative Hub (http://www.thepalliativehub.com/about-us), an online gateway to information and resources about palliative care which includes:

  • Palliative Hub – Children and Young People – website for parents and families of children and young people with life limiting conditions
  • Palliative Hub – Adult – website for people with life limiting conditions, their carers and family members
  • Palliative Hub – Learning Platform – an online learning environment including a number of free to access online learning programmes for professionals and the public
  • Palliative Hub – Professional – website providing resources for health and social care professionals, researchers and educators.

 

Think Ahead: every life is a journey

The Irish Hospice Foundation encourages you to  Think Ahead

The purpose of Think Ahead is to help members of the public talk about and record their preferences in the event of emergency, serious illness or death.

The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.