Advance Care Planning – NICE

The National Institute for Health and Care Excellence has produced a quick guide for managers of care homes and home care services. Advanced care planning is the opportunity for people to plan their future care and support while they have the capacity to do so. Click HERE

 

Irish Resources on Advance Care Planning

Further information on Advance Care Planning and Advanced Care Directives from the Irish Hospice Foundation Click HERE

Assisted Decision-Making Capacity Act Click HERE

Enduring Powers of Attorney Click HERE

Resources for the Public and Professionals on Advance Care Directives Click HERE

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Palliative and End of Life Care Toolkit

The Palliative and End of Life Care Toolkit is produced by the Royal College of General Practitioners. The resources it provides can be used by healthcare professionals, informal carers, patients, and those close to someone nearing the end of life. Click HERE

It contains

  1. Clinical Resources and Guidance for Practice
  2. Resources and guidance for patients and carers

How to talk to children about death and dying – a guide

This guide is published by St Clare Hospice, UK and is designed to offer support to adults to help them feel more comfortable to approach the subject of death and dying and engage in meaningful conversations with their children. The guide is available HERE

Infographic HERE

Staff at St Clare Hospice talk to their own children about death

Caring for Carers Website

Caring for Carers (AIIHPC) website provides core information that is targeted at family members or friends who are providing support to a person who needs palliative care. The website contains eight main sections – within each section you will find links to useful websites and fact sheets. They include Caring for yourself, Caring at Home, Practical Care, Common Symptoms, Caring in a Hospice, Hospital or Residential Home, Advance Care Planning, Legal Matters and Funerals, Care as Death Approaches, Bereavement. If there is something you do not understand or, if you require detailed information about services in your area please contact a healthcare professional.

Research Report: GDPR and Health Research: Stakeholder Voices

Data protection and health research – what does the legislation mean for patients, the public and the research community?

The Irish Health Research Forum (IHRF) held an event entitled GDPR and Health Research: Stakeholder Voices in November 2018. It brought together patient advocates, the research community, health research funders, medical research charities, the healthcare industry, the Department of Health, the HRB, the HSE and many others to discuss the new Health Research Regulations and their implications. Please find  a report on the meeting,  with ten recommendations on data protection and health research.

 

HEAR Bulletin – Focus on Cystic Fibrosis

HEAR

This issue of Health Evidence Awareness Report focuses on Cystic fibrosis. It contains information for healthcare professionals such as links to Irish research, systematic reviews, guidelines. It also has patient-specific information such as links to useful websites, books and videos. Full-text is available CLICK HERE

Self Help eLibrary

3Ts Self Help eLibrary has produced a series of self-help booklets together with the National Health Service that are available to download for free and are intended as a ‘first step’ towards recovery across a range of mental health topics. Each booklet is 20 to 30 pages long and contains information, tips and techniques for coping with and managing a particular issue Click HERE