Palliative Care & Disabilities

This All Ireland seminar, jointly funded by the HRB and HSC R&D and hosted by the AIIHPC in June 2018, focussed on the challenges for people with life limiting disabilities, the impact and implementation of the new legislation in relation to decision making and what this means for health care researchers and professionals to support evidence-based practice.

The seminar had a number of speakers and the videos of the presentations can be viewed by clicking HERE


Agenda

Supporting people with intellectual disability and advanced dementia: Complexities in end of life care Professor Mary McCarron, Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin (TCD)

Key considerations in relation to the Mental Capacity Act (NI) 2016 from the clinical perspective Dr Gerry Lynch, Chair of Royal College of Psychiatrists Northern Ireland

Legal capacity legislation on the island of Ireland and its human rights implications Dr Eilionóir Flynn, Director of the Centre for Disability Law and Policy and Senior Lecturer, School of Law, National University of Ireland Galway (NUIG)

Conversation Panel 1: What are the main considerations for people with life-limiting disabilities receiving palliative care and this legislation? Chair: Associate Professor Suzanne Guerin Participants: Eithne Frost (AIIHPC Voices4Care); Kathy Ryan (Alzheimer Society of Ireland’s Irish Dementia Working Group); Prof Mary McCarron; Dr Gerry Lynch; Dr Eilionoir Flynn; Deirdre Shanagher (Development Officer, Irish Hospice Foundation)

Implementation of the Assisted Decision-Making (Capacity) Act 2015: Implications for health and social care professionals Áine Flynn, Director of the Decision Support Service (DSS), Mental Health Commission

Health services perspective on implementing this legislation Caoimhe Gleeson, National Programme Lead – Assisted Decision Making, Health Services Executive (HSE)

How will legislation impact practice? Professor Gavin Davidson, Senior Lecturer School of Social Sciences, Education and Social Work, Queens University Belfast (QUB)

Research collaboration supporting practice: University of Limerick and Milford Care Centre Dr John Lombard, Lecturer in the School of Law, University of Limerick (UL) and Dr Martina O’Reilly, Head of Education, Research and Quality, Milford Care Centre

Conversation Panel 2: How can research support implementation of the legislation? Chair: Associate Professor Suzanne Guerin Participants: Áine Flynn; Prof Gavin Davidson; Dr John Lombard; Dr Martina O’Reilly; Caoimhe Gleeson; Dr Bernadette Rock (Policy and Research Manager, The Alzheimer Society of Ireland)

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HSE Policy on GDPR

General Data Protection Regulations is an EU law on data protection and privacy that came into force in May 2018. More information about the HSE Data protection policy, GDPR and training resources from the Health Service Executive are available HERE

Every nurse an e-nurse: insights for a consultation on the digital future of nursing

This report outlines the results of a consultation with nurses and midwives on what is needed for nursing to play its full part in the digital transformation of health care. It argues that until the NHS takes full advantage of the expertise and views of nurses, it won’t be able to realise all the benefits that digital technology can bring for patients and staff. Full-text HERE

Health Service’s Change Guide

The HSE have launched the website supporting their Health Services Change Guide. There are a number of documents on facilitating change and the way in which the HSE expects staff, managers and leaders to behave in relation to change. There are also templates, some of which may be useful to those of you leading teams or developing strategies.

The Health Services Change Guide is a step by step guide that will help you to lead and bring about change. This Change Guide works as part of the HSE  Human Resource and other service, quality improvement and culture change programmes. In line with Health Services People Strategy 2015 -2018 all of these programmes aim to move closer to the goal of delivering person centred care and public value. Click HERE

National Patient Experience Survey

28,000 people who are 16 years old and over and who were discharged from one of the country’s 40 public acute hospitals in May were invited to give us their views.

You can find out more about the National Patient Experience Survey for 2018 here.

Plans are progressing to publish all of the findings from the National Patient Experience Survey 2018 online so that the results will be easily and quickly accessible to everyone.

You can follow our progress on www.patientexperience.ie or on twitter and facebook.

HIQA – Raising Awareness of Adult Safeguarding

A background document to inform the development of the national standards for adult safeguarding was published on the day of the seminar. This comprehensive document summarises international, national and academic evidence for adult safeguarding.

Short video created by HIQA and the Mental Health Commission was also launched at the seminar. The video promotes awareness about what safeguarding is and how it is connected to people’s rights, health and wellbeing.

 

Introducing Peoples Needs Defining Change – Health Services Change Guide, 2018

The Health Services Change Guide is a helpful and practical resource to support all of us working across the health and social care system to achieve safer, better healthcare, and staff and public value.

The guide incorporates:

  • Health Services Change Framework
  • Step-by-step guidance and templates to implement the Change Framework that can be adapted and used by local teams and services.
  • Additional Resources – signposting you to where you can get additional help.
  • It is supported by a Literature Review completed by the Centre for Health Policy and Management, Trinity College Dublin: Understanding Change in Complex Health Systems – a review of the literature on change management in health and social care 2007–2017.
  • The Health Services Change Guide complements and supports the work of the Health Services People Strategy – together these two offerings to the system set out our ambition to be leaders in people services working in partnership with service managers to increase relevance and impact particularly for service users, families, communities and staff.

For more information on the Health Services Change Guide, 2018, the Health Services Change Guide Information Leaflet is available from Information and Updates, or please visit the information tabs on the Change Hub Welcome Page The Change Guide and associated resources will be available on the Change Hub in June 2018 and also from www.hse.ie/changeguide.