Planning for the Future: Information for people who have an advancing neurological illness

 

pLANNING DOR THE FUTURE

This booklet is for people who have an advancing neurological illness, and who want to make plans for their future. It may also be useful for family members, friends, carers and healthcare professionals. It is not for people who have recently been diagnosed with an advancing neurological illness. If you are newly diagnosed, contact an organisation that supports people living with your illness, such as those listed on pages 21 and 22. Although many neurological illnesses progress in a similar way, your illness is individual and unique to you. Understanding the nature of your particular illness will help you as you read this booklet. It can also help you to understand and manage your symptoms, and help you to speak confidently with your healthcare team. You can get information from your doctor and other healthcare professionals, or from the organisations which support people living with your illness. Full-text available HERE

This booklet aims to help you to:

  • understand why planning for the future can be helpful
  • find out how you can plan for your care in advance
  • sort out your legal affairs

 

 

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NICE Guideline: Parkinson’s disease in adults

This guideline covers diagnosing and managing Parkinson’s disease in people aged 18 and over. It aims to improve care from the time of diagnosis, including monitoring and managing symptoms, providing information and support, and palliative care. To access the guideline, click HERE

The guideline includes recommendations on: