Lenus

Lenus, the Irish Health Research repository is the leading source for Irish research in health and social care maintained by the HSE health librarians.  The Lenus collections include peer reviewed journal articles, grey literature, dissertations, reports and conference presentations. Lenus contains the publications of the Irish Health Service Executive (HSE) and the collected research output of over 130 health organisations past and present are all freely accessible. If you are an Irish Researcher or have conducted research in an Irish Institution or Health Organisation you can add your published research to Lenus. Submitted articles must be available in Open Access format or the publishers policy permit author self archiving. Publishing on Lenus  or in an open format is a great way to ensure that Irish research can reach as many people as possible and therefore increase the potential for that research to impact in decision-making and inform evidence-based healthcare. You can access LENUS Irish Health Research Archive HERE

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Third Action Plan Update of the National Strategy on Children and Young People’s Participation in Decision-Making 2015-2020: July 2017 – June 2018 Report

This is the third annual report on the implementation of the actions in the National Strategy on Children and Young People’s Participation in Decision-Making, 2015-2020. It is guided and influenced by the United Nations Convention on the Rights of the Child (UNCRC) and the EU Charter of Fundamental Rights.

The actions outlined in the strategy aim to address the challenges that exist in children and young people being enabled to participate appropriately in decision-making. Full-text is available HERE

Research Report: GDPR and Health Research: Stakeholder Voices

Data protection and health research – what does the legislation mean for patients, the public and the research community?

The Irish Health Research Forum (IHRF) held an event entitled GDPR and Health Research: Stakeholder Voices in November 2018. It brought together patient advocates, the research community, health research funders, medical research charities, the healthcare industry, the Department of Health, the HRB, the HSE and many others to discuss the new Health Research Regulations and their implications. Please find  a report on the meeting,  with ten recommendations on data protection and health research.

 

Voices4Care

Through Voices4Care, All Ireland Institute of Hospice and Palliative Care (AIIHPC) is committed to having the views of people with palliative care needs and their families at the heart of what we do. We work with a range of hospices, health and social care organisations and universities across the island of Ireland. Palliative care focusses on helping a person with a life-limiting illness to achieve the best quality of life as their illness progresses.

Joining Voices4Care will give you the chance to influence palliative care education, research, policy and practice.

If you are a person with palliative care needs, a carer, or a citizen interested in improving palliative care, we want to hear from you.

Members will have meaningful opportunities to influence and shape palliative care in Northern Ireland and the Republic of Ireland.

To find out more, visit https://aiihpc.org/our_work/policy-practice/voices-4-care/ For further information, contact the AIIHPC Tel – 01 4912948 or email bohara@aiihpc.org 

 

Dementia Diagnostic Services for Ireland

A systematic review has been published by the National Dementia Office entitled “Dementia Diagnostic Services for Ireland: a Literature Review”

The review published in 2018 highlights that there is no “one size fits all” when it comes to creating the best approach and pathway. The review makes a significant contribution to the evidence needed to inform the creation of an equitable system for diagnostic assessments in Ireland as part of the advancement of the National Dementia Strategy.

Full-text Report – CLICK HERE

Palliative Care Research Zone on AIIHPC

In May, the AIIHPC launched a newly developed research zone on The Palliative Hub – Professional. The research zone is now broken down into several easy to navigate sections including: Palliative Care Research Projects and News & Events. The research zone will continue to evolve over time.

To access the Palliative Care Research Network, Early Career Researcher Forum, Research Projects, Guidance for conducting research projects, Knowledge Dissemination Click here

Enhancing adult bereavement care across Ireland

Enhancing adult bereavement care across Ireland is a study written by Kathy McLoughlin and published by the Irish Hospice Foundation in May 2018. It examines why Ireland needs a bereavement care structure, looks at international evidence and outlines how a national structure might work. Full-text available HERE