Latest issue of Health Evidence Awareness Bulletin is on Traumatic Brain Injury & Concussion.

HEAR

The purpose of the Health Evidence Awareness Report is to provide specialised information to health professionals, patients and the public about specific health topics. Each issue is a result of the collaboration of librarians from health organisations across Ireland. This issue looks at some aspects of traumatic brain injury and concussion. It includes guidelines, Irish research and patient information such as useful websites, good reads and information on support groups for those affected.

https://www.lenus.ie/handle/10147/623799

 

 

 

 

Advertisements

Difficult Conversations – Heart Failure

Difficult Conversations – Making it easier to talk to people with heart failure at the end of life Click HERE

This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.

Palliative Care & Disabilities

This All Ireland seminar, jointly funded by the HRB and HSC R&D and hosted by the AIIHPC in June 2018, focussed on the challenges for people with life limiting disabilities, the impact and implementation of the new legislation in relation to decision making and what this means for health care researchers and professionals to support evidence-based practice.

The seminar had a number of speakers and the videos of the presentations can be viewed by clicking HERE


Agenda

Supporting people with intellectual disability and advanced dementia: Complexities in end of life care Professor Mary McCarron, Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin (TCD)

Key considerations in relation to the Mental Capacity Act (NI) 2016 from the clinical perspective Dr Gerry Lynch, Chair of Royal College of Psychiatrists Northern Ireland

Legal capacity legislation on the island of Ireland and its human rights implications Dr Eilionóir Flynn, Director of the Centre for Disability Law and Policy and Senior Lecturer, School of Law, National University of Ireland Galway (NUIG)

Conversation Panel 1: What are the main considerations for people with life-limiting disabilities receiving palliative care and this legislation? Chair: Associate Professor Suzanne Guerin Participants: Eithne Frost (AIIHPC Voices4Care); Kathy Ryan (Alzheimer Society of Ireland’s Irish Dementia Working Group); Prof Mary McCarron; Dr Gerry Lynch; Dr Eilionoir Flynn; Deirdre Shanagher (Development Officer, Irish Hospice Foundation)

Implementation of the Assisted Decision-Making (Capacity) Act 2015: Implications for health and social care professionals Áine Flynn, Director of the Decision Support Service (DSS), Mental Health Commission

Health services perspective on implementing this legislation Caoimhe Gleeson, National Programme Lead – Assisted Decision Making, Health Services Executive (HSE)

How will legislation impact practice? Professor Gavin Davidson, Senior Lecturer School of Social Sciences, Education and Social Work, Queens University Belfast (QUB)

Research collaboration supporting practice: University of Limerick and Milford Care Centre Dr John Lombard, Lecturer in the School of Law, University of Limerick (UL) and Dr Martina O’Reilly, Head of Education, Research and Quality, Milford Care Centre

Conversation Panel 2: How can research support implementation of the legislation? Chair: Associate Professor Suzanne Guerin Participants: Áine Flynn; Prof Gavin Davidson; Dr John Lombard; Dr Martina O’Reilly; Caoimhe Gleeson; Dr Bernadette Rock (Policy and Research Manager, The Alzheimer Society of Ireland)

HSE Policy on GDPR

General Data Protection Regulations is an EU law on data protection and privacy that came into force in May 2018. More information about the HSE Data protection policy, GDPR and training resources from the Health Service Executive are available HERE

Planning for the future with COPD

COPD

The booklet was crucially developed by people living with COPD, family carers, a respiratory healthcare professional, COPD Support Ireland and the IHF. It contains information on advance healthcare directives, planning legal affairs, talking to others about your wishes, palliative care needs and a list of other resources which people with COPD might find helpful. Full-Text AVAILABLE HERE

COPD is an umbrella term used to describe progressive lung diseases including chronic bronchitis or emphysema. It is a long-term illness that cannot be cured. Over 500,000 people in Ireland have COPD. Ireland also has the highest rate of COPD admissions to hospital in the EU.

 

AIIHPC Palliative Hub

AIIHPC recently launched The Palliative Hub (http://www.thepalliativehub.com/about-us), an online gateway to information and resources about palliative care which includes:

  • Palliative Hub – Children and Young People – website for parents and families of children and young people with life limiting conditions
  • Palliative Hub – Adult – website for people with life limiting conditions, their carers and family members
  • Palliative Hub – Learning Platform – an online learning environment including a number of free to access online learning programmes for professionals and the public
  • Palliative Hub – Professional – website providing resources for health and social care professionals, researchers and educators.

 

Think Ahead: every life is a journey

The Irish Hospice Foundation encourages you to  Think Ahead

The purpose of Think Ahead is to help members of the public talk about and record their preferences in the event of emergency, serious illness or death.

The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.