General Data Protection Regulations is an EU law on data protection and privacy that came into force in May 2018. More information about the HSE Data protection policy, GDPR and training resources from the Health Service Executive are available HERE
The booklet was crucially developed by people living with COPD, family carers, a respiratory healthcare professional, COPD Support Ireland and the IHF. It contains information on advance healthcare directives, planning legal affairs, talking to others about your wishes, palliative care needs and a list of other resources which people with COPD might find helpful. Full-Text AVAILABLE HERE
COPD is an umbrella term used to describe progressive lung diseases including chronic bronchitis or emphysema. It is a long-term illness that cannot be cured. Over 500,000 people in Ireland have COPD. Ireland also has the highest rate of COPD admissions to hospital in the EU.
AIIHPC recently launched The Palliative Hub (http://www.thepalliativehub.com/about-us), an online gateway to information and resources about palliative care which includes:
- Palliative Hub – Children and Young People – website for parents and families of children and young people with life limiting conditions
- Palliative Hub – Adult – website for people with life limiting conditions, their carers and family members
- Palliative Hub – Learning Platform – an online learning environment including a number of free to access online learning programmes for professionals and the public
- Palliative Hub – Professional – website providing resources for health and social care professionals, researchers and educators.
The Irish Hospice Foundation encourages you to Think Ahead
The purpose of Think Ahead is to help members of the public talk about and record their preferences in the event of emergency, serious illness or death.
The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.
Patient and carer stories have been produced by the All Ireland Institute of Hospice and Palliative Care. They are available to view HERE
This issue includes information for people affected by lung cancer including links to useful websites, patient guides, videos and blogs. The purpose of HEAR is to provide specialised information to health professionals, patients and the public about key health topics. Each issue is the result if the collaborative effort of librarians from health organisations across Ireland. Full-text available HERE