Research Report: GDPR and Health Research: Stakeholder Voices

Data protection and health research – what does the legislation mean for patients, the public and the research community?

The Irish Health Research Forum (IHRF) held an event entitled GDPR and Health Research: Stakeholder Voices in November 2018. It brought together patient advocates, the research community, health research funders, medical research charities, the healthcare industry, the Department of Health, the HRB, the HSE and many others to discuss the new Health Research Regulations and their implications. Please find  a report on the meeting,  with ten recommendations on data protection and health research.

 

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HSE Policy on GDPR

General Data Protection Regulations is an EU law on data protection and privacy that came into force in May 2018. More information about the HSE Data protection policy, GDPR and training resources from the Health Service Executive are available HERE

General Data Protection Legislation: Preparing for 2018

The Data Protection Commissioner has issued a booklet on General Data Protection Regulation which will come into force on 25th May 2018. The DPC has produced guidance and compiled a checklist to assist organisation with the move towards full compliance.  Full-text available HERE