Caring for Carers (AIIHPC) website provides core information that is targeted at family members or friends who are providing support to a person who needs palliative care. The website contains eight main sections – within each section you will find links to useful websites and fact sheets. They include Caring for yourself, Caring at Home, Practical Care, Common Symptoms, Caring in a Hospice, Hospital or Residential Home, Advance Care Planning, Legal Matters and Funerals, Care as Death Approaches, Bereavement. If there is something you do not understand or, if you require detailed information about services in your area please contact a healthcare professional.
HEAR (Health Evidence Awareness Report) are published by a collaborative group of healthcare librarians working mainly in the HSE and other healthcare organisations in Ireland.
For healthcare professionals, there are links to relevant guidelines, research and reviews. For patients and the public, there is information on quick reads, useful websites and support services. We have created a suite of bulletins based on a comprehensive list of health care topics which you will see listed below.
HEAR – Health Evidence Awareness Report is published by healthcare librarians for healthcare professionals as well as the general public on a variety of different topics. This month’s issue focuses on Bereavement and contains research, reviews, guidelines and standards as well as support services, good reads and leaflets and information for the public. Full-text available HERE
Care Alliance Ireland has published a booklet to support people whose caring has ended – as they enter a new phase in their lives. When caring ends many family carers experience a range of emotions – grief, exhaustion, isolation – a real void in their lives can emerge.
The booklet is a resource for former carers with useful information, advice and resources. Full-text available Click Here
Table of Contents
Section 1 Who this booklet is for Section 2 How this booklet can help
Section 3 Books and videos from former carers
Section 4 Family carers Ireland Section 5 Bereavement
Section 6 Online support Section 7 Finances
Section 8 Wills and legal advice Section 9 Filling the void
Section 10 Returning to work Section 11 Retraining and study
Section 12 Volunteering Section 13 Health and Wellbeing
Section 14 What the research tells us
Healthcare Improvement Scotland – Older People in Acute Care Improvement Programme has launched a series of videos on delirium. The videos could be used in a variety of ways to continue to raise awareness of the importance of listening to family members and to further engage a range of partners. The videos highlight three individual stories told by women of their mothers’ experience of delirium.
Delirium: a daughter’s perspective
First Signs of Delirium
Causes of Delirium
Help and Reassurance
The Department of Health, UK published a “Basic Guidelines for People who Commission Easy Read Information”. These guidelines introduce a minimum standard for writing easy read material. Full-text to the guidelines are available HERE
These guiding principles are as follows:
- 1. Ensure that people with learning disabilities are involved from the start.
- 2. Provide information through a range of channels and formats.
- 3. Ensure that your information meets users’ needs.
- 4. Clearly signpost to other services.
- 5. Always define responsibility for information provision.