The Palliative and End of Life Care Toolkit is produced by the Royal College of General Practitioners. The resources it provides can be used by healthcare professionals, informal carers, patients, and those close to someone nearing the end of life. Click HERE
The aim of the Palliative Care Model of Care is that: “Every person with a life-limiting or life-threatening condition can easily access a level of palliative care appropriate to their needs, regardless of care setting or diagnosis, in order to optimise quality of life”.
A Model of Care broadly describes a framework that brings together regulatory, organisational, financial, and clinical aspects of service provision to outline best practice in patient care delivery. A ‘model of care ’is a multifaceted concept but one that is important because of the link between adoption of best practices (as outlined in the Model of Care) and the delivery of improved patient outcomes.
Caring for Carers (AIIHPC) website provides core information that is targeted at family members or friends who are providing support to a person who needs palliative care. The website contains eight main sections – within each section you will find links to useful websites and fact sheets. They include Caring for yourself, Caring at Home, Practical Care, Common Symptoms, Caring in a Hospice, Hospital or Residential Home, Advance Care Planning, Legal Matters and Funerals, Care as Death Approaches, Bereavement. If there is something you do not understand or, if you require detailed information about services in your area please contact a healthcare professional.
The Palliative, End of Life and Bereavement Education Database is a searchable database of courses offered by hospices, universities, colleges, charities, professional organisations at a varying level through to Masters of Science and Doctoral level. It allows you to search for a variety of courses, workshops, conferences as well as full and part-time courses. The aim is to improve access to palliative care education across the Island of Ireland. To access this online education directory, click HERE
Parkinson’s: managing palliative and end of life care – free online training resource from Parkinson’s UK and the Open University. Duration: 10 hours
Who is the course for?
It has been designed for professionals, such as Parkinson’s specialist nurses and other clinicians, who work as part of the specialist team during the palliative and end of life phases. It may also be useful for health and social care professionals who already have experience of working with people with Parkinson’s, but wish to enhance their knowledge of palliative and end of life care in Parkinson’s.
What participants will learn
the principles of palliative and end of life care and how these can be applied in Parkinson’s
how to identify the challenges in practice of applying palliative and end of life care principles in Parkinson’s
the theory of advance care planning and the issues involved, such as power of attorney or advance decision to refuse treatment
the symptoms which indicate the end of life phase in Parkinson’s and the issues in management of this phase
the importance of the family/carers of the client and their needs throughout the end of life phase through to bereavement
How does it work?
As a health or social care professional you will have already undertaken learning on Parkinson’s or have a good understanding of the condition. If you don’t we suggest you first take one of the courses in the related training section below.
This course is not suitable for professionals with a limited understanding of Parkinson’s.
The course is on the Open University’s OpenLearn Create website. You can work through it online at a pace that suits you.
You will have an opportunity to reflect on your practice, and you can use it as a framework to support group work with your colleagues.
This booklet has been developed by the Palliative Care Senior Nurses Network for people seeking information about palliative care. This easy to read short booklet seeks to help people ask the questions they need to gain the information they need about their own illness or their loved ones illness and what role palliative care can provide.
Ted Talks are available on the All Ireland Institute of Hospice & Palliative Care Hub specifically relating to palliative and end of life care.
TED is a nonprofit devoted to spreading ideas, usually in the form of short, powerful talks (18 minutes or less). TED began in 1984 as a conference where Technology, Entertainment and Design converged, and today covers almost all topics — from science to business to global issues.