Palliative Care Booklet – Asking the Questions that Matter to Me

This booklet has been developed by the Palliative Care Senior Nurses Network for people seeking information about palliative care.  This easy to read short booklet seeks to help people ask the questions they need to gain the information they need about their own illness or their loved ones illness and what role palliative care can provide.

It is available HERE

 

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Ted Talks Palliative Hub

Ted Talks are available on the All Ireland Institute of Hospice & Palliative Care Hub specifically relating to palliative and end of life care.

TED is a nonprofit devoted to spreading ideas, usually in the form of short, powerful talks (18 minutes or less). TED began in 1984 as a conference where Technology, Entertainment and Design converged, and today covers almost all topics — from science to business to global issues.

A video game to cope with grief

Let’s talk about dying  

Stories from a home for terminally ill children

Listen to these powerful stories HERE

 

AIIHPC Palliative Hub

AIIHPC recently launched The Palliative Hub (http://www.thepalliativehub.com/about-us), an online gateway to information and resources about palliative care which includes:

  • Palliative Hub – Children and Young People – website for parents and families of children and young people with life limiting conditions
  • Palliative Hub – Adult – website for people with life limiting conditions, their carers and family members
  • Palliative Hub – Learning Platform – an online learning environment including a number of free to access online learning programmes for professionals and the public
  • Palliative Hub – Professional – website providing resources for health and social care professionals, researchers and educators.

 

Palliative Care Services Three Year Development Framework 2017-2019

The HSE has published Palliative Care Services Three Year Development Framework 2017-2019. This is a key document for the future development of palliative care in the Republic of Ireland.

The objective of the Framework was to inform and direct the development of adult palliative care services, both generalist and specialist, in Ireland for the three-year period. In so doing, the focus of the Framework was to identify the gaps that exist in the current level of service provision and to present a set of recommendations and actions which over the duration of the Framework (and at times beyond) would seek to address these service issues / deficits, subject to available resources.

 

Irish Cancer Society/AIIHPC Funding Call 2017

This research call is to enhance the quality of life for those living with cancer and receiving palliative care. Information on this funding call are available HERE

The objective of this seed funding award is to fund a research project focussing on supporting impactful research for people receiving palliative care for cancer and that this seed award would support the researcher in submitting a competitive proposal for sizeable funding to an external funding organisation within 12 months of completion of seed funding period.

The research proposals should aim to:

  • Improve the quality of care for people with life limiting cancer
  • Provide research evidence to inform policy and improve practice
  • Enhance clinical and research competence in palliative care for people living with cancer
  • Build research capability and capacity in palliative care for people living with cancer

NICE Guideline: Parkinson’s disease in adults

This guideline covers diagnosing and managing Parkinson’s disease in people aged 18 and over. It aims to improve care from the time of diagnosis, including monitoring and managing symptoms, providing information and support, and palliative care. To access the guideline, click HERE

The guideline includes recommendations on: